Hey!
It’s been a while.
Surgery was a success! They removed the cancerous mass from my breast, about 8.5 cm in circumference with clean margins. That’s the part that made it worth it – clean margins and it had not spread to my lymph nodes! If I felt better, I would be doing the happy dance!
The incisions are healed, mostly. The one under my arm where they removed the lymph nodes opened back up during radiation treatments. I was assured that it is not a problem but it’s disconcerting that there is an opening in my skin under my arm! OK, it downright freaks me out.
Radiation therapy was completed on July 7th – with a celebratory dinner out! In all honesty, it was the first social outing since before my diagnosis. It seems that any “outing” has been to doctors, medical appointments, treatment, picking up prescriptions, or obtaining necessary food stuff. That last week of treatment, the burns started getting pretty bad. I had four days of intense pain – and little to take the edge off.
For those four days, it was how do I get through the next few minutes? Then the next hour? It wasn’t a day to day thing, it was intensely minute by minute. I spent a lot of those four days in tears. The skin had begun to peel away in the area of the burn which extends from the top of the breastbone to just below the breastbone, and around my side up to the underarm area. For those four days, the area was flaming red, skin gone, several spots of open sores and weeping blisters. not pleasant! Oh the joys of being a white girl!
If you know someone who is going through radiation – do something nice for them! Maybe not hug them, because it hurts. The treatments themselves are painless. Just lay on the metal table, get into the exact location, and let the machine do its thing. Simple – it takes all of about fifteen minutes from donning the hospital gown to redressing.
But later, the after effects of radiation are cumulative. In the digital age of Google and WebMD, I can honestly say my burns were not the worst I’ve seen. I am thankful for that! They were/are painful never the less. What I wouldn’t have given for a morphine IV drip for that week!
I smell like burned flesh – gee, I wonder why?! My husband tries to say he can’t smell it but I catch him cringing on occasion as he brushes by in the kitchen, or if I move my arm in bed. He is trying so hard to not make me feel bad about it. He’s been my champion. I am very thankful for his support.
So, why am I telling you all of this? I’m not looking for your pity. I’m not even looking for sympathy. This is where I am. I’m not sharing to lament and whine. I’ve had numerous friends call me or say to me that I need to stay positive. A positive outlook is a key tool to fighting cancer. I have a positive outlook. I have a positive view on the whole overall deal.
Let’s be honest though, life isn’t all sunshine and lollipops. Sometimes we have to go through the hard times. I could have opted not to have treatment and then live with the constant fear that it may come back. It might anyway, but I am doing everything I can to win this battle.
Just because I am being real and honest doesn’t mean I am depressed. It doesn’t mean I feel hopeless. If I felt it was hopeless, then it would be moronic to endure the radiation! There are parts of this that absolutely suck! There is no way to pretty it up.
You can hang streamers on an IV pole all you want but it doesn’t change the fact that the IV is there. You can laugh and joke about all the crazy things people say when they come out of anesthesia but then there are people like me who can’t say a single funny thing because of the violent vomiting post surgery. It’s hard to be happy when you burst a blood vessel in your eyeball from straining because of the vomiting. These things do not make me happy! But, being happy isn’t really the goal, is it?
Isn’t the goal to fight to live another day? To live a better day in the future?
I think part of that 8.5 cm mass they removed also held my tolerance for stupid people. Not that I had much of it to begin with, but my tolerance for things are at an all time low.
- Pretentious people – Just don’t. For all of the effort in trying to appear to be something they are not, it’s blatantly obvious to everyone but the most obtuse that they do not possess such skill. Or those who try to act like caring individuals but in reality are mentally checked out as soon as they say “how are you doing?” They don’t really care, they don’t want to know. They really didn’t plan on seeing you. It’s much easier to post a smiley face on your social media page.
- Perpetually happy people – AKA PLastic Barbie world. Seriously, life isn’t always happy. The day your puppy got run over is not a happy day. The day your fiancee’ breaks up is not a happy day. My guess is they are either in denial because they believe the lies that if you admit that you aren’t 100% happy then you are depressed and may need to take medication. I’ve got a news flash – you may need it anyway. Seriously, life has some pretty crappy days. The fact that you can dry your eyes and move beyond them to see the bigger picture and a future sunrise is an absolute miracle. I rejoice that they found this cancer early I rejoice that they got all of it in surgery, and I rejoice that I am through the treatments! I still feel like crap. I still am recovering from radiation burns. I have to take this medicine for the next 5 years – but I can make the most of today. And tomorrow. And many tomorrows to come.
- Rude people that say rude comments about anyone who is not one of the pretty people. This stems from a couple of experiences I’ve had. The first was an incredibly rude woman dressed like white trash waving her arms around in line at the pharmacy. She elbowed me post surgery in her demonstration of her actions to the other person on the phone – yeah, I don’t get it either. Then yesterday, while waiting yet again at the pharmacy – I got to hear the whispers of people, pointing, whispering, commenting on the horrible burns that I dared to expose to their sight. I mean the nerve, right? How dare I expose people to an uncomfortable “condition”. Shame on me!
Yes, I’m sarcastic.
So here’s the deal: some days suck. Most days rock. I plan to have the percentage of good days far exceed the sucky days from this point on. I’m still not up to 100% but I may have to find what the new 100% will be.
I see better days ahead! OH! and writing days as well!
Write on my freinds, write on!
You are such an inspiration! Hang in there you on the hill up now!
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